Transcript Slide 1

Reaching Out to Share the
Benefits of Care:
Retention and Peer
Advocacy
May 24, 2012
For Audio: Dial-in#: 866.394.2346 Participant Code: 3971546368#
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Welcome & Overview
 This Partners in+care webinar is offered as
part of the in+care Campaign.
 The in+care Campaign is a national effort to
improve retention in HIV care.
Michael Hager
NQC Manager,
TA/Dissemination
New York, NY
mth02@health.state.ny.us
 Webinars are one of many Partners in+care
activities designed to engage people living
with HIV/AIDS and their allies in the in+care
Campaign.
 This webinar addresses how peer advocacy
supports engagement in HIV care and
retention. It is the third in our series. Others
identified why retention is important and role
of self-care.
For more information: www.incarecampaign.org
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Welcome, Overview, Participation Guidelines
Ground Rules for Webinar Participation
 Welcome
 This is a “public event.” If you have confidentiality concerns
...
- Your names appear on-line in the list of webinar
registrants--consider just listing to the audio or to viewing
the webinar at a later time, after it is posted at
www.incarecampaign.org
- All webinars are recorded--do not use identifying
information when asking questions
For Audio: Dial-in#: 866.394.2346 Participant Code: 3971546368#
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Welcome, Overview, Participation Guidelines
Ground Rules for Webinar Participation
 Actively participate and write your questions into the chat
area during the presentation; we will also have a “pop up”
question exercise, and will pause for conversation during
the webinar
 Do not put us on hold
 Mute your line if you are not speaking (press *6, to
unmute your line press #6)
 The slides and recording of this and other Partners in+care
webinars are available for playback and group
presentations at www.incarecampaign.org – “Resources” tab
For Audio: Dial-in#: 866.394.2346 Participant Code: 3971546368#
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Welcome & Introduction
Agenda

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

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Welcome, Overview, Participation Guidelines - 5 mins
Agenda, Learning Objectives, Introductions - 5 mins
Characteristics of Effective Peer Advocacy, 20 mins
Putting Peer Connections into Action, 20 mins
Connecting through Partners in+care, 5 mins
Wrap-up & Evaluation, 5 mins
Bob Tracy, NQC
Conversation
Peer Consultant
St. Paul, MN
bobtracyconsulting@gmail.com
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opportunities throughout webinar
Welcome & Introduction
Learning Topics
At the end of this webinar, you will know more about . . .
 How peer advocacy can be used to support retention in
HIV care
 Key elements of successful peer advocacy
 How to use Partners in+care to support your retention
activities
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Retention & Peer Advocacy
What is retention?
 Stay in care / Return to care
 Retention –having a routine
for seeing your doctor/health
care provider on a regular
schedule
 Doing this persistently –
year-after-year-after-year
There is a relationship—a seemingly obvious relationship— between
regular medical visits and improved health and reduced mortality.
Research published in 2010 provides the first data to demonstrate the
survival advantage of regular HIV care. [Giordano, 2010]
For more information about retention and its benefits visit
www.incarecampaign.org – “Resources” tab
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Retention & Peer Advocacy
What are barriers to retention?
Check out the in+care Campaign video
www.incarecampaign.org –
“Partners” tab
 Do not feel sick
 Need more HIV info
 “Life” gets in the way
• Other health issues
• Little experience with
routine health care
• Not enough help
 Clinic/system too complex
• Processes are confusing
• Need more help at clinic
For more information about barriers to retention visit
www.incarecampaign.org - “Resources” tab
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For more information about barriers to retention visit
www.incarecampaign.org - “Resources” tab
Retention & Peer Advocacy
How can peer advocacy improve retention?
 Peer-to-peer connections can
support retention
 Can be formal [staff] or
informal [volunteers]
 What can peers offer peers?
 What makes for effective peer
advocacy?
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Characteristics of Effective Advocacy
“Positive Examples” – Experiences of Peer Educators
 Peers can impact access,
engagement & effective use of care
and services, social support, self care
& contribute to cost effectiveness
Marcia Dutcher
Evaluation Consultant
Kansas City, MO
marciadutcher@yahoo.com
 Evaluation based on PETS/REC –
Understand essential characteristics
of peer-based interventions & role of
peers?
“Positive Examples”: A Bottom-up Approach to Identifying Best Practices in HIV Care and Treatment
Based on the Experiences of Peer Educators, AIDS Patient Care & STDs, Vol. 25, April, 2011
http://www.cardeaservices.org/resources/documents/rsc_Positive-Examples-Dutcher-Phicil-Goldenkranz.pdf
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Characteristics of Effective Advocacy
PETS/REC Overview
 Train PLWHA to serve as peers to
engage other PLWHA in care and
treatment
 Build capacity of organizations
and communities to integrate peers
into HIV care and treatment
services
“Positive Examples”: A Bottom-up Approach to Identifying Best Practices in HIV Care and Treatment
Based on the Experiences of Peer Educators, AIDS Patient Care & STDs, Vol. 25, April, 2011
http://www.cardeaservices.org/resources/documents/rsc_Positive-Examples-Dutcher-Phicil-Goldenkranz.pdf
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Characteristics of Effective Advocacy
“Bottom-Up” Approach to Defining Effective Advocacy
 Interviewed experienced HIV+
peers
 23 interviewees; urban/rural;
variety of demographic
characteristics & peer work
experience
 Describe roles, activities, strategies
and elements important to success
“Positive Examples”: A Bottom-up Approach to Identifying Best Practices in HIV Care and Treatment
Based on the Experiences of Peer Educators, AIDS Patient Care & STDs, Vol. 25, April, 2011
http://www.cardeaservices.org/resources/documents/rsc_Positive-Examples-Dutcher-Phicil-Goldenkranz.pdf
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Characteristics of Effective Advocacy
Context for Peer Advocacy
 Relationship
•
•
•
•
Mutually identified as HIV+
Shared experience
Credibility; role model
motivate change
 Support
• Focus on health behaviors; access and
use of care/treatment
• Practical needs; relieving barriers
• Flexible response to needs
“Positive Examples”: A Bottom-up Approach to Identifying Best Practices in HIV Care and Treatment
Based on the Experiences of Peer Educators, AIDS Patient Care & STDs, Vol. 25, April, 2011
http://www.cardeaservices.org/resources/documents/rsc_Positive-Examples-Dutcher-Phicil-Goldenkranz.pdf
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Characteristics of Effective Advocacy
Social Support Categories
Instrumental
Informational
Emotional
Tangible aid and
services that
directly assist a
person in need
Communicating
advice or
information to
assist a person in
addressing
problems or selfassessment
Providing
Convey or assist
empathy, love,
with a connection
caring and trust to a social
network of
reciprocal help or
mutual oblication
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Affiliational
Characteristics of Effective Advocacy
Social Support Categories
Instrumental
Informational
Emotional
Affiliational
Directly connect
to care
Support learning
& understanding
Support &
relieve stress
Address isolation
Provider referrals
Comprehend info
from providers
Research info &
resources
Scheduling
support [e.g.
reminder calls,
rides]
Not replace
provider; clarify
in layperson’s
terms
Understand &
navigate health
system/provider
Prep for provider
visits
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Connect to social
Build confidence networks
to change
Integrate
behavior
opportunities to
Challenge to
inform & engage
change behavior care
Motivate change
Characteristics of Effective Advocacy
Summary of Findings
 Unique ability to engage and motivate;
power of common experience and role
models
 Provide direct education and connect to
care and resources [e.g. support retention]
 Also address basic needs [e.g. overcome
barriers to retention]
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Characteristics of Effective Advocacy
Summary of Findings
 Peer advocate needs to be comfortable
identifying as HIV+; establish connection
 Ability to flexibility respond to needs
 Creating fit with clinic/organization;
clearly define peer roles and fit; using social
support framework can help
 Training and support are critical
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Characteristics of Effective Peer Advocacy
Conversation
Pop-up
Question
In your opinion, what is the
social support peers can
provide most effectively?
Instrumental?
Informational?
Emotional?
Affiliational?
Additional Questions? Contact us a info@incarecampaign.org
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Putting Peer Connections into Action
Panel Discussion - Introduction
Mike Maginn, Executive Director
Friends of People with AIDS
Peoria, IL
mjmaginn@mmci.org
What have we learned
from our experiences about
what makes peer advocacy
effective and useful for
promoting retention?
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Steve Tifft, Health Educator
MN AIDS Project / Positive Link
Minneapolis, MN
steve.tifft@mnaidsproject.org
Marcia Dutcher
Evaluation Consultant
Kansas City, MO
marciadutcher@yahoo.com
Putting Peer Connections into Action
Panel Discussion - Introduction
Central IL Friends of People
Living with AIDS
Activities include . . .
 Train peer navigators for state of Illinois
 3-day training
 Prepare for formal or informal system support
[i.e. work employment or volunteer peer support]
 Facilitate placement & site integration
 Provide on-going supervision and support
For more information: Contact Mike Maginn – mjmaginn@mmci.org
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Putting Peer Connections into Action
Panel Discussion - Introduction
Minnesota AIDS Project –
Positive Link
Activities include . . .
 Self-care education and emotional support
 Coordinated with MCM & Quick Connect
 Peer advocacy services provided 1:1, groups,
Web/email/social networking
For more information: Contact Steve Tifft – steve.tifft@mnaidsproject.org
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Putting Peer Connections into Action
Panel Discussion
In your experience, what
kind of support services do
you think peer advocates are
particularly effective at
providing, especially in terms
of helping people get into or
stay in care?
Please post your response to this question in the chat room.
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Putting Peer Connections into Action
Panel Discussion
Based on your experiences,
what makes for an effective
peer advocate?
Please post your response to this question in the chat room.
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Putting Peer Connections into Action
Panel Discussion
Based on your experiences,
when do you know it is a
good idea for someone to be
connected with a peer
advocate?
Please post your response to this question in the chat room.
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Putting Peer Connections into Action
Panel Discussion
What needs to happen to
effectively integrate peer
advocacy into a professional
team?
Please post your response to this question in the chat room.
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Putting Peer Connections into Action
Panel Discussion
Peer advocacy is not just a
face-to-face experience.
There is increased interest in
social networking. What
experiences have you had
using social network and
what have been some of your
key lessons learned?
Great resource! “Social Media and HIV,” HRSA CARE Action, June 2011.
http://hab.hrsa.gov/newspublications/careactionnewsletter/june2011.pdf
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Putting Peer Connections into Action
Panel Discussion – Wrap Up
What advice would panelists
or participants like to share
about using peer advocates to
promote retention?
Please post your response to this question in the chat room.
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Connect to Partners in+care
An Invitation
John Spaero, Program Coordinator
Maricopa County EMA
Phoenix, AZ
johnspaero@mail.maricopa.gov
 Join the Partners
in+care network
 Visit Partners in+care
web page; click the
“Join Partners in+care”
red box
 Encourage others to
join the Partners
in+care network
Visit www.incarecampaign.org – Partners Tab
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Connect to Partners in+care
How Pi+c fits into the in+care Campaign
QI Projects &
Data
Webinars/
Meet Authors
Partners in+care
Champions
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Coaches
Connect to Partners in+care
Why get involved
 Resource for planning group &
advisory committee work
 Support peer programs
 Resources to support
retention through self-care,
peer connections and QM
activities
 Share “insider tips”
www.incarecampaign.org
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Connect to Partners in+care
Why get involved
 Partners in+care FB
network to share tips,
stories and resources
 Partners in+care
toolkit
 More webinars
www.incarecampaign.org
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Connect to Partners in+care
Upcoming Webinar
 Retention & Youth, Thursday, May 31 2
pm ET
– in+care Campaign webinar
 Empowering Consumer Engagement,
Thursday, June 21
3 pm ET – NQC TA Webinar
 Working Together as Partners in+care,
Thursday, June 28
2 pm ET – Partners in+care webinar
www.incarecampaign.org
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Connect to Partners in+care
What We Hope to Accomplish
Share what we know so we all get better at:
 Seeing our doctor and HIV care providers on a regular
basis
 Reaching out and supporting others so they see their
doctors and HIV care providers on a regular basis –
especially those who are new to HIV care or who have
stopped regular visits
 Making sure we all get the full benefit of care and
treatment in order to improve our health
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Sign up to be a
Partner!
Campaign Headquarters:
National Quality Center (NQC)
90 Church Street, 13th floor
New York, NY 10007
Phone 212-417-4730
incare@NationalQualityCenter.org
incareCampaign.org
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Partners in+care
Selected References
Cheever, Laura. Engaging HIV-infected Patients in Care: Their Lives
Depend on It, Clinical Infectious Disease, 2007; Vol.44, Issue 11, pp
1500-1502.
Dutcher, Marcia Veronnica, et. al., “Positive Examples: A Bottom-Up
Approach to Identifying Best Practices in HIV Care and Treatment Based
on the Experiences of Peer Educators,” AIDS Patient Care & STDs, Vol.
25, April, 2011.
http://www.cardeaservices.org/resources/documents/rsc_Positive-Examples-Dutcher-Phicil-Goldenkranz.pdf
Giordano TP, Gifford AL, White AC Jr, et al. Retention in Care: A
Challenge to Survival with HIV infection. Clinical Infectious Disease,
2007; Vol.44, Issue 11, pp 1493-1499.
“Social Media and HIV,” HRSA CARE Action, June 2011.
http://hab.hrsa.gov/newspublications/careactionnewsletter/june2011.pdf
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